Contact Address
Louise Gergel Fellowship
c/o APS Support UK (formerly Hughes Syndrome Foundation)
The Orchard,
White Hart Lane,
Basingstoke,
Hampshire,
RG21 4AF
Phone:
0300 323 9943 or 01256 423896
Email:
Media calls (24 hrs)
Mike Petrook - 07931 302 877 or email: PR@lgfellowship.org
Charity Number:
1138116 (APS Support UK)
Further information about Hughes Syndrome can be found at the following places
APS Support UK
(Formerly The Hughes Syndrome Foundation)
Wikipedia
http://en.wikipedia.org/wiki/Antiphospholipid_syndrome
Netdoctor
www.netdoctor.co.uk/diseases/facts/antiphospholipid.htm
Home Health UK
BBC
www.bbc.co.uk/health/conditions/hughessyndrome1.shtml
Medicinenet
Rare Thrombotic Diseases Consortium
St Thomas' Lupus Trust
The London Lupus Centre
Lupus UK
BT - Never heard of Hughes Syndrome? You could still be at risk
Helpgroups and discussion groups
An International Support Group for people who have Hughes Syndrome/ Antiphospholipid Syndrome. We offer support, help, understanding and information about Hughes Syndrome/Antiphospholipid Syndrome.
http://health.groups.yahoo.com/group/APLSUK/
Have you had recurrent miscarriages and discovered you have Hughes Syndrome or Antiphospholid Antibody Syndrome? Or do you have Hughes Syndrome and are either pregnant or would like to be. This is a group for discussing your fears and worries, asking questions and supporting each other.
http://health.groups.yahoo.com/group/HughesSyndromePregnancySupport/
APS Foundation of America - Friends and support
Prescription drug information
Drug3k- Prescription drug information for consumers.
Media Links
BT - Never heard of Hughes Syndrome? You could still be at risk
BBC Radio Oxford interview with Will Stammers yesterday - you will need to move the bar over to 2.11 as he was interviewed arowww.bbc.co.uk/programmes/p0... Kent on Sunday e Spotlight on condition of ‘sticky blood’- page 32: edition.pagesuite-professio...
South Wales Evening Post – Rare blood disorder was the cause of my seizure
The contents of this website are for informational purposes only and are not a substitute for medical advice or treatment. You should promptly seek professional medical care if you have any concern about your health.