The Louise Gergel Fellowship was set up to fund research into Hughes Syndrome, or "sticky blood", and to raise public awareness of the disease. 2011 was an important year for the charity as it marked 10 years since the tragic death of Louise Gergel. We held a series of events in her memory. On Thursday 21st July, 2011, the Chancellor of the Exchequer, George Osborne, MP, hosted an evening reception at number 11 Downing Street for the Louise Gergel Fellowship. Anna Petrook and Professor Graham Hughes also addressed the audience which included many of the charity’s supporters and Dr Bertolaccini, the Louise Gergel research fellow. On 3rd December 2011 we held a 10th anniversary fund raising dinner, raising £10,000, with emotional speeches from Louise’s family and Dr Khamashta, head of research into Hughes Syndrome.  0.5% of population suffer from Hughes Syndrome 500,000 to 1,000,000 British Adults have APS More common than Leukaemia or Multiple Sclerosis 1 In 5 young strokes due to Hughes syndrome 15% of miscarriages The greatest advance in obstetrics - treating APS Please check our news-events page for the latest informationNews-Events.htmlhttp://www.justgiving.com/Stephen-Parkusshapeimage_1_link_0

Dr Laura Bertolaccini

The Louise Gergel Fellow

Professor Hughes at 11 Downing Street explaining some of the main symptoms of Sticky blood and advances in treatment to the Chancellor of the Exchequer.

July 21st 2011.

 

BBC News Report on Tuesday, 23 February 2010

A British doctor is claiming that a test which costs just a few pounds, could prevent many miscarriages and save hundreds of lives.

Professor Graham Hughes, the man who discovered Hughes syndrome otherwise known as "sticky blood", is calling for more testing on the NHS.

http://news.bbc.co.uk/go/em/fr/-/1/hi/health/8529912.stm


Hughes Syndrome

Antiphospholipid Syndrome, otherwise known as Hughes Syndrome or "sticky
blood" can cause a wide range of clinical problems including migraine, deep vein thrombosis , memory loss or heart attack.  It is thought to be a major contributory factor in :


  1. • One in 5 of all strokes in people under 40 

  2. • A quarter of all people with multiple miscarriages

  3. • 20% of sufferers of DVTs ("economy class syndrome")


Although this illness is starting to be more widely recognised and many sufferers can now be treated, there has been little research into its cause or its occurrence in the wider population.  For more information on Hughes Syndrome click here.

The goal of the Louise Gergel Fellowship is to help finance research into Hughes Syndrome at St Thomas' Hospital in London, England.  We also aim to raise awareness of the disease.

Any help you can give us would be gratefully received.


Louise Gergel 


Louise Gergel died suddenly at the age of 32.  She had been diagnosed with Antiphiospholipid Syndrome.  In her short life she made a huge contribution to the community by giving much of herself to people in need and projects of communal welfare.  Her family wish to perpetuate her name, especially so that her son, Max, who was three when she died, may follow Louise's good example in his path through life.









Address: The Louise Gergel Fellowship,

c/o The Hughes Syndrome Foundation,
Conybeare House,
Guy's Hospital
London SE1 9RT

Phone: 020 7188 8217

Email: info@lgfellowship.org

Charity Number: 1138116

The contents of this website are for informational purposes only and are not a substitute for medical advice or treatment. You should promptly seek professional medical care if you have any concern about your health.

 

Professor Graham Hughes at the LGF launch